Alexandra's life turned upside down after she noticed a mass on the body of her two -year -old son while she was bathing. After 11 months of searching for an answer, the family received a shock diagnosis
My mother recalled the moment when her entire life turned upside down when she spotted something unusual with her little boy.
After giving her her two -year -old son Ravierti, Alexandra was moisturizing her son when she noticed a small mass in a hall. Knowing that it was unusual for her son, Alexandra, 40 years old, Raffiri to see GP in January 2023 and he was given ultrasound after two weeks after referral. However, almost a year has not been discovered the cause of the mysterious blocs. Her beloved son had a rare form of cancer.
“Ravieri was sent to refer for two weeks, after ultrasound, and this date did not come quickly enough,” she says. “I called the hospital and was told that the referral letter was sitting on the advisor's office awaiting the review. This was when we decided to go to accelerate matters. The advisor we saw suggested that he take him to A & E to get some of the fastest answers.”
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While she was nervously waiting for the results, Alexandra Ravieri took to A& E to perform another examination and was told that he had a benign tumor, but no biopsy was arranged. However, with continued broken growth, reaching the size of the grapes, the Rafferty family continued to search for an answer.
After months of appointments, scanning, tests and specialized referrals, Alexandra's “Mother's Instinator” told her that there was something wrong. After clicking on the answers, ultrasound in November 2023, followed by MRI and Biopsy in December about the sad news that Rafferty had had a fibrous sarcoma, a malignant tumor that was developing in connective tissues.
In the United Kingdom, 15 people are diagnosed with sarcoma every day. According to Cancer Research UK, symptoms of soft tissue sarcoma include the following: a painful mass in the beginning, a mass that increases pain, pain, or tenderness with an increase in the size of the mass.
“I didn't know what the sarcoma is at the time,” Alexandra revealed. “It took a full year to get a certain diagnosis. I felt I couldn't rest, because I knew something right. It is the mother's instinct. I felt a part of me very comfortable when we finally got a diagnosis because I felt madly in that year, and I pushed the answers, and there you only could do it as mothers.
“We put our confidence in the system, and when I felt that we had failed it a little in that year – if they chose it a little closer, there will be no year of appointments. It was a mixture of emotions but we felt comfortable because we had a diagnosis that was confirmed, and we could have treated it and dealt with what would happen.”
Although it was “comfortable” for an answer during the past 11 months of uncertainty, hearing the diagnosis was a concept that is an understandable concept of Alexandra and her family. “We felt sad because it is very few and you are thinking automatically,” she added. “We destroyed and fully left to address what cannot be conceived, but through fear and sorrow, we had to find the power to focus on what happened next.”
After diagnosing the shock, in January 2024, Rafferty had a process of removing his tumor at the Royal National Orthopedic Hospital in Stanmour. “The days before Ravier's surgery were full of a mixture of hope and anxiety,” his mother explained.
“Those moments, although incredibly difficult, reminded us of the flexibility that we did not know with us. It's stuck with us for a while. I don't think anything like that really leaves you.
“In the hospital, you see all these children who suffer from chemotherapy and what they are going through while it is tragic. We felt almost guilty to see what other families are going through, and you suddenly. You have a feeling of” my God, I cannot believe this happens to me. “
Despite everything it was going through, the positive Rafferty shines and lived through the slogan “Be good, be brave, be strong.” His work was successful and is now four years old, and they are Ravieri under the auspices of the Royal Marsen Hospital, where he had regular and checks.
More than a year later, Alexandra is keen to increase awareness of sarcoma and take over the London Marathon on Sunday April 27 to raise funds for the UK charitable Sarcoma. “I want to make consciousness, because family members and friends have not heard of us about sarcoma, and I don't really think that the word is present enough,” she says.
“The London Marathon has always been a dream for me, but I had no reason very close to my heart, so far. Every step I took during training and every mile I run on the race day will be for the sake of Rafaerti, because children and other families fight sarcoma, and it is hope that we will one day to have better treatments, and perhaps previous diagnoses and perhaps. It is a good thing.
As it took nearly a year until her son is diagnosed, Alexandra has some words of advice for parents who may go through something similar. “I also want to tell other parents to trust your intestine, and to check your children to get blocks and things, and if you are not sure, do not hesitate,” she says.
Initially, I actually apologized to the doctors and said, “I am really sorry, should I be here? “Do not hesitate if you are not sure.
“We are very grateful to Alexandra to manage the London Marathon and help us support brave children like Ravierty. Ravierti's rare cancer trip reminds us of why the continued investment in sarcoma research is very vital,” says Kerry Reeves Knip, director of fundraising and communications at Saroma, UK.
“His story highlights the decisive need for a faster and more accurate diagnosis. Ravieri has witnessed months of uncertainty before identifying sarcoma – a delay that emphasizes the importance of our continuous research to improve early detection and treatment that provides hope for families facing this difficult journey.”
To donate to collect donations in Alexandra, please visit Justgiving.com/page/alexandra-runningforraf
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