Note Andres Albaladejo, nascent in his left arm in April 2023, but he didn't think it was a evil thing
A 41 -year -old man was left reeling after a “stranger” in his arm was linked to a devastating diagnosis of atrophic side sclerosis (ALS), which gave him just two years to live. Andres and his wife, Carmen, 39, initially refused to emerge in April 2023 as a dangerous thing.
However, although the bone ingredient that indicates that it was just a besieged nerve, the constant weakness in Andres pushed a visit to a neurologist. After undergoing three electrical photography tests to assess muscle electrical activity, he was referred to Als Clinic in October 2023.
The clinic handed over the broken news that Andres had als, a disease that gradually destroying neurons in the brain and spinal cord, and estimated that it had remained from two to three years. In an attempt to combat the disease, Andres tried to treat stem cells in September 2024, which temporarily helped but has lost his effect since then.
Now, Carmen focuses on creating permanent memories with Andres and their 11 -year -old daughter, Sofia. Andres, who was previously working as a school resource official in Tamba, Florida, expressed his sorrow: “I felt sad when I heard the news, like my life was taken from me – I still have a lot of me.”
Abi Muhazin spoke about the suffering of a peripheral disease, and he admitted that the most difficult part is to know that he will not see his little girl growing up.
Andres said: “I am angry that I will not be here to see my little girl growing into a smart, nice, and beautiful woman. I know she will be. I think this hurts more. Instead, she must see me collapsing in front of her eyes.
“I just hope that throughout all this, my daughter still sees me as a hero, as I face this disease with determination and strength.”
The first sign that there was something wrong in April 2023, when Andres Carmen's wife noticed that his left arm was trembling. Initially, they thought it was just a punctured nerve, but over time, Andres began to suffer from weakness in his arm.
“I noticed the tingling in his left arm and asked what's going on. I was strange. I asked if he could feel it, if he was doing anything to make it, but he said no,” Carmen, a senior accountant.
The couple visited the bones in June 2023, which took the X -rays that showed some nerve pressure. However, despite the treatment, the arm continued, and Andres was referred to a neurologist.
Carmen said: “At that time, doctors said they would schedule him to perform the disk replacement of the disk that was pressing his nerves,” Carmen said.
“But before moving forward and doing it, they made three EMGS where the neurologist became more interested at a time when the tingling was traveling to his chest.”
Andres was later transferred to the ALS clinic, where he was diagnosed with ALS – the same condition that Stephen Hawking – after the strength test. He got a diagnosis from two to five years.
The diagnosis left Andres and Carmen in a state of shock and confusion, which led them to search for a second opinion, which confirmed the diagnosis of Als.
Carmen said: “From the presence of a nerve piled up to his illness with a final disease after eight months – we were in a state of shock and denial. It was a destructive, and you can never imagine that it will happen to you or loved ones.
“Within eight months, our lives changed completely. We thought it was nervous pressure, and now Andres suffers from a final disease with a diagnosis between two to five years. It is a big thing to hear on one date.”
Nowadays, Andres is on the ALS to slow down the development of the disease. In September 2024, friends, family and strangers gathered together to raise $ 26,235 (19365 pounds) for stem cell therapy in the Cayman Islands in an attempt to slow down or reflect the development of the disease.
Currently, there are no treatments from the stem cells approved by the Food and Drug Administration available in the United States, but there are many ongoing experiments to investigate the safety and effectiveness of the use of stem cells to slow progress or stop progress.
Carmen stated that the treatment has succeeded, but the effects have now worn, and they cannot withstand another round of treatment. She said: “We face the disease face to face and deal with it every day.
“At this point, we get our affairs in order, where we cannot see any promising treatments we can withstand. We are trying to remain strong and do our best.”
Carmen recently bought a special book for their daughter, Sofia, to work with Andres, and create permanent memories. Carmen explained: “It is called” my father, “a book that will collect it.
“You will ask him questions about his childhood, and get to know him from a different perspective. He allows her to have something that he can cherish forever.”
